"Being a Zebra means something different to each and every single person......One thing that I think that all of us have in common is that we will continue to fight with everything we have no matter what.......we put up and go through so much that we are a special breed of people and we are a group that has a kick ass support system and I think we have to tip our hats off to every social media site out there....it is because of them that so many of us have the support we need from all around the world!"
- Jennifer K.
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"I appreciate you for taking the time to educate others about EDS. After suffering a carotid dissection and two aneurysms, I'm now being tested for vascular EDS. This site has been helpful to me. Thanks."
- BettyTara Doleman, Pharm.D.
"This is a great organization."
"My donations to EDSers United is in support of my children."
"My donation to EDSers United is in support of the strongest EDSer I know and love, my mom.""
"My donation to EDSers United is in support of my wonderful husband."
"Thank you for supporting the EDS Community."
The Voices of the Community
This Support Wall displays direct quotes from the people EDSers United has reached and created an impact. The lives that have been positively affected by EDSers United is the driving force for our team to remain Strong, Connected, and United. Thank you for keeping our team motivated.
"In loving memory of my mother, the strongest EDSer I knew."
"You've done for many of us what we were unable to do on our own!"
"Thank you for helping me to realize that I am not alone."
"When one person speaks all you hear is a whimper, when a heard speaks you hear a roar."
"Thank you for bringing us together, closer to hope for a cure."
"Thank you for keeping our community informed and connected."
"I support EDSers United!"
"Realizing that there is a way to be connected beyond just making sure my bones are all lined up has transformed my every day. The power of the human connection is amazing. I can't get out much, but I can be connected better than before - literally at the speed of light! Yay internet and technology.... but most of all, yay to the human connection which will always find a way. This gives me strength, hope and power. Thank you."
"Ehlers Danlos Syndrome is something I've remained mindful of since I first learned about it, which tells me that awareness works. I look forward to the day when there is a cure."