The opinions expressed in EDSers United's user-generated content areas like communities, reviews, ratings, guestbook entries, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of EDSers United. User-generated content areas are not reviewed by a EDSers United physician or any member of the EDSers United editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatments or uses of drug products that have not been approved by the U.S. Food and Drug Administration. EDSers United does not endorse any specific product, service or treatment. 

Do not consider user-generated content as medical advice. Never delay or disregard seeking professional medical advice form your doctor or other qualified healthcare provider because of something you have read on (EDSers United's website). You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. EDSers United understands that reading individual, real-life experiences can be a helpful resource, but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately. 

Copyright 2010-2023. EDSers United. All Rights Reserved.

EDSers United



The individual using EDSers United at may view, reproduce or store copies of articles provided that the articles are used only for their personal, noncommercial use. Uses beyond that allowed by the "Fair Use" limitations (sections 107 and 109) of the U.S. Copyright laws require permission of the publisher.

Information Disclaimer and Legal Agreement

Please read this agreement entirely and carefully before using the EDSers United website ( 

By using the EDSers United site, you agree to be bounds by the terms and conditions below and in the EDSers United Privacy Policy. If you do not wish to be bound by these terms and conditions, you may not use this site.

Disclaimer About Medical Information: 

The information and reference materials contained here are intended solely for the general information of the reader. It is not to be used for treatment purposes,but rather for discussion with the patient's own physician. The information presented her is not intended to diagnose health problems or to take the place of professional medical care. The information contained therein in neither intended to dictate what constitutes reasonable, appropriate or best care for any given health issue, nor is it intended to be used as a substitute for the independent judgement of EDSers United is the inability to take into account the unique circumstances that define the health issues of the patient. If you have persistent health problems or if you have further questions, please consult your health care provider. All visitors to this and other EDSers United associated web sites agree to read and abide by the complete terms of this agreement. 

Legal Disclaimers


  1. The EDSers United website does not constitute an attempt to practice medicine
  2. The use of the site does not establish a doctor-patient relationship
  3. Individuals should consult a qualified health care provider for medical advice and answers to personal health questions
  4. While the site attempts to be as accurate as possible, it should not be relied upon as being comprehensive or error-free
  5. EDSers United is under constant development and changes may be made in the articles, information, programs, and resources at any time
  6. The website reserves the right to change its disclaimer or privacy policy, so users should review these periodically

No medical advice.

The information posted here by EDSers United is not to be considered medical advice and is not intended to replace consultation with a qualified medical professional. We may answer and post medical questions solely on our own discretion. We do not have the resources or capability to answer all EDSers United visitor questions. In general, the questions we choose to answer are (in our opinion) of value to our readers. The answers to these questions should in no way be considered specific medical advice or a plan for disease management. Our goal is to provide sufficient information so that EDSers United visitors are able to become knowledgeable participants in their disease management plan. The primary responsibility of your disease management plan is with your treating physicians and you should only follow your treating physicians advice. DO NOT change/modify your disease management plan on your own without consulting your treating physicians. 

No Warranties.

This website is provided on an "as is," "as available" basis without warranties of any kind, express or implied, including but not limited to, those of TITLE, MERCHANTABILITY, FITNESS FOR A PARTICULAR PURPOSE or NON-INFRINGEMENT or any warranty as to accuracy, timeliness, completeness or arising from a course of dealing, usage, or trade practice. No oral advice or written information provided by EDSers United or its contributors/volunteers or its affiliate organizations shall create a warranty; nor shall members or visitors to the site rely on any such information or advice.

Disclaimer of Liability.

The user assumes all responsibility and risk for the use of this website. Under no circumstances shall EDSers United or its contributors/volunteers or its affiliated organizations or anyone else involved in creating or maintaining this website be liable for any DIRECT, INDIRECT, INCIDENTAL, SPECIAL or CONSEQUENTIAL DAMAGES, or LOST PROFITS that result directly or indirectly from the use or inability to use the website and/or any other websites which are linked to this site - or that result directly or indirectly from mistakes, omissions, interruptions, deletion of files, viruses, errors, defects, or any failure of performance, communications, failure, theft, destruction or unauthorized access. 

In states which do not allow some or all of the above limitations of liability, liability, liability shall be limited to the greatest extend allowed by law. 

Online Conduct.
Visitors agree to use the website only for lawful purposes and are prohibited from posting on the website any unlawful, harmful, threatening, abusive, harassing, defamatory or obscene material of any kind, including, but not limited to, any material which encourages conduct that would constitute a criminal offense, give rise to civil liability or otherwise violate any applicable local, state, national or international law. This applies to any posting that could be termed as Sexual Harassment and or Discrimination. Although in the absence of a specific complaint the postings are not monitored for compliance with this provision, in an effort to discourage such conduct, please note that all postings in the Comments/Guestbook/Forums/Blogs/etc. will list that author's name. EDSers United reserves the right to remove any comments that do not abide by the online conduct as proposed. 

Link Disclaimer.

Links are provided only as an informational resource. Please not that many of the links provided are not on our servers and are not maintained by us or affiliated with any services provided by us. These links are provided simply as a service, and it should not be implied that we recommend, endorse or approve of any of the content at the linked site(s), nor are we responsible for their availability, accuracy or content. 

Disclaimer of Endorsement.

Reference to any products, services, hypertext link to the third parties or other information by trade name, trademark, supplier or otherwise does not constitute or imply its endorsement, sponsorship or recommendation by EDSers United or its contributors/volunteers or those of its affiliated organizations. They are for convenience only. 

EDSers United Privacy Policy and Information:

We respect your privacy and towards that purpose, maintain our website by the following principles: 

You do not need to disclose personal information to use the EDSers United website. No such information is obtained about you unless you choose to submit it to us. For example, if you email us your comments, that identifies your email address or if you fill in the web-contact form that may collect some relevant personal information. EDSers United's authorized-individuals who access this information will do so for specific and narrowly defined purposes that are strictly and exclusively noncommercial and such purposes are required to have explicitly defined health information or health research enhancement goals. 

We had made reasonable efforts to ensure that the information you may provide is confidential and not personally identifiable. You should understand, however, that we cannot guarantee that electronic transmissions via the internet are 100% secure from interception, and thus cannot guarantee the security and confidentiality of this information. 

Except for authorized law enforcement investigations or other facially valid legal processes, we ill not share any information we receive with any parties outside of EDSers United.


The above notice was reviewed on April 28, 2012 and is in force currently. In the event any changes are made to this notice, the amended notice will carry the date it was amended. In addition a link to the original notice will be provided. If there are any concerns regarding this notice, please email us at

Research Library & Gallery Copyrights, and Restrictions:

This site is controlled and operated by EDSers United (also known as EDSers United Foundation). The site was created to be both useful and educational to our community members. All materials on the site ("Online Materials"), including, without limitation, names, logos, trade markers, service marks, images, photographs, illustrations, audio clips and video clips, are protected by copyrights and other intellectual property rights owned and controlled by EDSers United. You may download and retain only a single copy of the Online Materials, solely for your personal, non-commercial use. No online material may be copied, reproduced, republished, modified, uploaded, posted, transmitted, distributed in any way, or otherwise used for any purpose without prior written permission. You may not add, delete, distort, or otherwise modify the contents on the site. Any unauthorized attempts to modify any online material, to defeat or circumvent our security features or to utilize the site for other than its intended purposes is prohibited.

The content on this website is provided to you free of charge as a convenience and for informational purposes only. EDSers United hereby grants to you a non-exclusive license to use this website solely for your personal and noncommercial use. Any unlawful use of this site or any use inconsistent with these terms and conditions is prohibited and will result in immediate and automatic termination of such limited license. Additionally, action will be taken against you to the fullest extent of the law. 

No part of this website or the information contained here shall or may be considered professional advice and the user should not assume that there is any professional relationship that exists or is created. EDSers United is dedicated to providing quality information, but makes no claims, promises or guarantees about the accuracy, completeness, or adequacy of the information contained in or linked to this website or any of its associated sites and partners. As with any advice, medical, diagnostic or therapeutic, which must be tailored to the specific circumstances of each case, nothing provided herein should be used as a substitute for the advice of retained, competent medical professionals.

The above notice was reviewed on January 2, 2015 and is in force currently. In the event any changes are made to this notice, the amended notice will carry the date it was amended. In addition a link to the original notice will be provided. If there are any concerns regarding this notice, please email us at