EDSers United

                   

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                     #WIRCforRare 

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Next In-person Meeting

Date: April 23, 2017

Start Time: 1:00pm-3:00pm

Location:    RWJ Health & Wellness Center

                    100 Kirkpatrick Street

                    New Brunswick, NJ 08901














This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease. 


Come learn about the rare disease social media campaign that will debut at the World Orphan Drug Congress! Learn how you can get involved and advocate for rare diseases!


No registration is required. However we do appreciate RSVPs and/or a quick txt to 201-702-4075.

All are welcome and encouraged to attend.


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Copyright 2010-2016. EDSers United. All Rights Reserved.

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General Information

  • As a result of several requests from the members of the community, we have transformed the format of our NJ Community Support Program to include Art Therapy through our Paint to Donate Program, in addition to our discussion and guest presenter meetings. More programs are in the works.
  • Please arrive on time. All meetings begin on time. If you are unable to attend after RSVPing, please cancel by either calling and leaving a message if no response or texting 201-702-4075. You may also email your cancelation to EDSersUnited@edsers.org.
  • Each Support Group Meeting is FREE of charge, for those who would like to contribute however, we do have an appreciation donation. This donation is tax deductible and provides the financial support needed in order to continue providing support, resources, and assistance to the community. 
  • If you are a professional looking to donate your time to conduct one-on-one consultations, present to the group, or host a class (which must be therapeutic of sorts) through our community support program, please email us at CommunitySupport@edsers.org.                                                                             

About the NJ Rare Disease Community Support Program


EDSers United hosts the Community Support Program every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ (dates are subject to change due to holidays and bad weather). This program is lead by our Community Support Program Director, Juan Floriano. We encourage everyone to check this page to stay up-to-date on the details of the following meeting. We ask that anyone interested in attending RSVP below so that we can make sure there are enough seating, materials, snacks, etc.


Click Here for the list of future Community Support Events.


New Jersey Community Support Program