Below are the details for the Virtual Video Meetings via Zoom.
When: Every 4th Sunday of the Month
TIme: 01:00 PM ET - 2:00 PM ET
Join Zoom Meeting using Link: https://us02web.zoom.us/j/83307094174?pwd=dzdJOHBnU3o0MGNmTk5wMXZOUHkvUT09
December 25, 2022 Meeting Date is Cancelled for the Holidays.
Next meeting will begin on the 4th Sunday of January.
January 22, 2023
Prior to the global pandemic, EDSers United hosted the Community Support Program, every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ. Now each support group meeting takes place virtual via Zoom (link found above). We encourage everyone to check this page to stay up-to-date on the details of each month's meeting.
This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease.
Come share your story, ask questions, and learn about how you can get involved in a safe space for people of all varieties with rare connective tissue disorders like Ehlers-Danlos Syndrome, Marfan Syndrome, Loeys Dietz Syndrome, etc.
No registration is required. However we do appreciate RSVPs via a quick txt to 201-702-4075.
All are welcome and encouraged to attend.
We look forward to seeing you!