EDSers United
VIRTUAL SUPPORT GROUP MEETINGS
Below are the details for the Virtual Video Meetings via Zoom.
When: Every 4th Sunday of the Month
TIme: 01:00 PM ET - 2:00 PM ET
Join Zoom Meeting using Link: https://us02web.zoom.us/j/83307094174?pwd=dzdJOHBnU3o0MGNmTk5wMXZOUHkvUT09
December 25, 2022 Meeting Date is Cancelled for the Holidays.
Next meeting will begin on the 4th Sunday of January.
January 22, 2023
Copyright 2010-2022. EDSers United. All Rights Reserved.
General Information
- Please arrive on time. All meetings begin at 1:00 PM ET. If you are unable to attend after RSVPing, please cancel by texting 201-702-4075.
About the NJ Rare Disease Community Support Program
Prior to the global pandemic, EDSers United hosted the Community Support Program, every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ. Now each support group meeting takes place virtual via Zoom (link found above). We encourage everyone to check this page to stay up-to-date on the details of each month's meeting.
This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease.
Come share your story, ask questions, and learn about how you can get involved in a safe space for people of all varieties with rare connective tissue disorders like Ehlers-Danlos Syndrome, Marfan Syndrome, Loeys Dietz Syndrome, etc.
No registration is required. However we do appreciate RSVPs via a quick txt to 201-702-4075.
All are welcome and encouraged to attend.
We look forward to seeing you!