Complete the form below to RSVP to the next scheduled meeting
Date: May 26, 2019
(April's Meeting is Canceled for a Scientific Workshop in DC)
Start Time: 1:00pm-3:00pm
Location: RWJ Health & Wellness Center
100 Kirkpatrick Street
New Brunswick, NJ 08901
Sign up below to register your interest in being a special guest speaker.
EDSers United hosts the Community Support Program every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ (dates are subject to change due to holidays and bad weather). We encourage everyone to check this page to stay up-to-date on the details of the following meeting.
This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease.
Come share your story, ask questions, and learn about how you can get involved and advocate for rare diseases like Ehlers-Danlos Syndrome, Marfan Syndrome, Loeys Dietz Syndrome, etc.
No registration is required. However we do appreciate RSVPs and/or a quick txt to 201-702-4075.
All are welcome and encouraged to attend.
We look forward to seeing you!