EDSers United

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#WIRCforRare

Complete the form below to RSVP to the next scheduled meeting

Will you be bringing a child or children? Children are welcome. When we know children will be attending, we schedule an age appropriate craft and assign a host for the children. *

Yes

Email: *

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Discussion Request(s)

Name of the Rare Genetic Condition you reference above (if applicable):

Phone (will only be used to contact you regarding any cancelations and/or to provide you with specific updates regarding your appointment) *

Please pick the option that applies to you: *

I have received a diagnoses of a rare genetic condition

I am suspected to have a rare genetic condition

I am a friend/family member of someone with or suspected of having a rare genetic condition

I would like to learn more about rare genetic conditions and EDSers United's mission.

Name: *

Phone *

Name: *

Email: *

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Topic of Presentation *

Please let us know a little about you and the topic you would like to speak about with the group. *

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the NJ Community Support Group Updates.

Next In-person Meeting

Date: Aug. 27, 2017

Start Time: 1:00pm-3:00pm

Location: RWJ Health & Wellness Center

100 Kirkpatrick Street

New Brunswick, NJ 08901

This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease.

Come share your story, ask questions, and learn about how you can get involved and advocate for rare diseases!

No registration is required. However we do appreciate RSVPs and/or a quick txt to 201-702-4075.

All are welcome and encouraged to attend.

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General Information

As a result of several requests from the members of the community, we have transformed the format of our NJ Community Support Program to include Art Therapy through our Paint to Donate Program, in addition to our discussion and guest presenter meetings. More programs are in the works.
Please arrive on time. All meetings begin on time. If you are unable to attend after RSVPing, please cancel by either calling and leaving a message if no response or texting 201-702-4075. You may also email your cancelation to EDSersUnited@edsers.org.
Each Support Group Meeting is FREE of charge, for those who would like to contribute however, we do have an appreciation donation. This donation is tax deductible and provides the financial support needed in order to continue providing support, resources, and assistance to the community.
If you are a professional looking to donate your time to conduct one-on-one consultations, present to the group, or host a class (which must be therapeutic of sorts) through our community support program, please email us at CommunitySupport@edsers.org.

About the NJ Rare Disease Community Support Program

EDSers United hosts the Community Support Program every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ (dates are subject to change due to holidays and bad weather). This program is lead by our Community Support Program Director, Juan Floriano. We encourage everyone to check this page to stay up-to-date on the details of the following meeting. We ask that anyone interested in attending RSVP below so that we can make sure there are enough seating, materials, snacks, etc.

Click Here for the list of future Community Support Events.

New Jersey Community Support Program