Below are the details for the Virtual Video Meetings via Zoom.
When: Every 4th Sunday of the Month
TIme: 01:00 PM ET - 2:00 PM ET
Subscribe to Participate: https://form.jotform.com/223527978189070
We are no longer publicly publishing our Zoom meeting link to protect the group from being hacked by disturbed players during a meeting.
- May 28, 2023
- June 25, 2023
- July 23, 2023
- August 27, 2023
- Sept. 24, 2023
- October 22, 2023
- Nov. 26, 2023
- Dec. 24, 2023
Prior to the global pandemic, EDSers United hosted the Community Support Program, every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ. Now each support group meeting takes place virtual via Zoom. We encourage everyone to check this page to stay up-to-date on the details of each month's meeting.
This meeting is open to anyone living with a chronically debilitating rare disease, and/or caring for someone with a chronically debilitating rare disease.
The majority of people who join are individuals with rare connective tissue disorders like Ehlers-Danlos Syndrome, Marfan Syndrome, and Loeys Dietz Syndrome.
To protect the group from attempted hacks and disruptions, the Zoom link is no longer being shared publicly. However, you can receive a calendar invite to a Zoom meeting by texting your first name and email to 201-702-4075.
All are welcome and encouraged to attend.
We look forward to seeing you!