EDSers United




Below are the details for the Virtual Video Meetings via Zoom.

When: Every 4th Sunday of the Month

TIme: 01:00 PM ET - 2:00 PM ET

Join Zoom Meeting using Link: https://us02web.zoom.us/j/83307094174?pwd=dzdJOHBnU3o0MGNmTk5wMXZOUHkvUT09

December 25, 2022 Meeting Date is Cancelled for the Holidays. 

Next meeting will begin on the 4th Sunday of January.

January 22, 2023 ​ 


Copyright 2010-2022. EDSers United. All Rights Reserved.

General Information

  • Please arrive on time. All meetings begin at 1:00 PM ET. If you are unable to attend after RSVPing, please cancel by texting 201-702-4075.  

About the NJ Rare Disease Community Support Program

Prior to the global pandemic, EDSers United hosted the Community Support Program, every FOURTH Sunday of each month at the RWJ Health & Wellness Center located in New Brunswick, NJ. Now each support group meeting takes place virtual via Zoom (link found above). We encourage everyone to check this page to stay up-to-date on the details of each month's meeting. 

This meeting is open to anyone living with a rare disease, and/or caring for someone with a rare disease. 

Come share your story, ask questions, and learn about how you can get involved in a safe space for people of all varieties with rare connective tissue disorders like Ehlers-Danlos Syndrome, Marfan Syndrome, Loeys Dietz Syndrome, etc.

No registration is required. However we do appreciate RSVPs via a quick txt to 201-702-4075. 

All are welcome and encouraged to attend.

We look forward to seeing you!

Living Rare Community Support Program