Currently, there are no established treatment options or a cure for the underlying defect(s) that causes EDS, but the condition and its symptoms can be managed. The management of individuals with EDS is directed toward the specific symptoms that are apparent in each individual. Treatment may require the coordinated efforts of a team of specialists who may need to systematically and comprehensively plan an EDSer's management. Such specialists include pediatricians or internists; specialists who diagnose and treat disorders of the skeleton, joints, muscles, and related tissues (orthopedists); physicians who diagnose and treat skin disorders (dermatologists); specialists who diagnose and manage connective tissue diseases (geneticists); surgeons; physical and occupational therapists; and other health care professionals. Please visit the Research Library and review the list of articles under the Alternative Treatments category.
can be quite challenging. Although at first glance an individual with EDS may appear perfectly normal, internally most are forced to deal with chronic pain due to chronic damage as a result of joint and muscle instability. Individuals with EDS have a high prevalence of additional complications including organ dysfunction, migraines, and joint dislocations. This can make everyday tasks difficult and painful to perform.
Are you looking for physical therapy that is customized to your personal EDS-related situation? There are health and wellness facilities dedicated to serving EDSers and working with EDSers in and out of the pool in order to strengthen the muscles around the joint in order to prolong the deterioration caused by being born with EDS. The worst thing an EDSer can do to themselves in to not engage in physical therapy tailored to their specific situations.
If you are seeking ways of building your energy levels, addressing dietary deficiencies, potentially swapping pills for food, etc., then you need to educate yourself on certain basic Nutrition Principles. Our "Nutrition Crash Course" will help you better understand some quick terms, how food labels work, and some available resources out there to help guide you to healthy eating and ultimately feeling better.
Many of us have come up with ways to make accomplishing daily tasks easier and less painful. Discover useful tips for EDSers by EDSers.
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Some states allow the use of medical cannabis (also known as marijuana) to treat symptoms like chronic pain and nausea. Research has shown that medical cannabis may provide some patients that suffer certain given conditions with medical benefits.