EDSers United



10 Schalks Crossing Road

Suite 501-283

Plainsboro, NJ 08536

Did You Know?

There are < 7000 Rare Diseases

Paint to Donate  & Art Therapy Classes are available to the tri-state area
​(PA, NY, & NJ)!

Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and on average 350 million people globally.  Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. We are a nonprofit public charity organization dedicated to serving the medically complex rare disease community. Our history starts with the pursuit to serve the Ehlers-Danlos Syndrome (EDS) community. In 2015, we expanded our mission to embrace other rare connective tissue conditions to meet the evolving needs of the community. Today, EDSers United has joined the global efforts of the Rare Advocacy Movement to support the lived-experiences of people diagnosed with debilitating rare conditions like EDS. 

Paint to Donate

Copyright 2010-2023. EDSers United. All Rights Reserved.

EDSers United hosts virtual monthly support group meetings supported by the Rare Advocacy Movement and RWJ Health and Wellness Center. All affected/suspected of being affected by rare genetic conditions, friends and family are welcome to participate.

To learn more about the next NJ Community Support Group Meeting, click the link below:

Highlights from EDSers United