Our Mission

We are a nonprofit public charity organization dedicated to serving the EDS community. Together we must Stay Strong and Connected for Ehlers-Danlos Syndrome (EDS). You are encouraged to utilize the information and resources provided to you via EDSers United and to join our efforts in raising global awareness for EDS and funds for research. 

Voices of the EDS Community

Announcing April's 

Special Guest Blog Article:


I've Learned....

by Linda


​Sign up to be a special guest blogger today and contribute to the voices of the EDS community!

EDS stands for Ehlers-Danlos Syndrome. It's  a group of genetic connective tissue disorders, classified into 6 different types. EDS is the result of a collagen defect. Since collagen is in charge of holding our entire body (joints, organs, skin, etc.) together, this defect causes EDSers' joints, spine, organs, etc. to be extremely unstable resulting in chronic pain, constant dislocations, and many other complications that aren't necessarily visible to the naked eye.  

What is EDS?

June, 2014

NJ EDS Support Group Meeting

Spring-Summer, 2014

CC's Fundraiser for EDS Awareness & Research

2-4 May 2014

Abilities Expo: EDSers United's CC's Fundraiser

EDSers United

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