EDSers United



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Interesting Bloggers

  • A Blog of A Chronically Ill Teen - Nancy is  a teen blogger from the UK with an aim to share her experience as a teen EDSer and raise awareness for Ehlers-Danlos Syndrome. 
  • EDS Together - Becky is in her mid twenties and is diagnosed with EDS Type 7. She suffers from many co-morbididties associated with EDS and experiences multiple dislocations of the shoulder, hips, knees, thumbs, fingers, and toes and is in constant pain. Becky has developed a forum website that centers around positivity. 
  • EDS Awareness Project - Devan is a fellow EDSer sharing her story about her day to day life of living with EDS. Deven invites other EDSers to share their story at her site as well.
  • Less Flexible - Madora Pennington is on a mission to master treating EDS. She states, "I found a doctor who came up with a treatment that works very well. I sleep deeply. I have energy. I am healing. I even run a little. No more dysautonomia. I feel better than I ever have been in my life."
  • Ehlers-Danlos Syndrome - Elizabeth Vos has EDS Hypermobility type, and blogs about life with Ehlers-Danlos Syndrome: the illness itself, thoughts about how to cope, how healthy people treat you and how that affects our lives, etc.
  • Pretty Ill - Dr. Diana, both a doctor (therapeutic optometrist) and a patient (on professional disability), offers help and hope for Multiple Sclerosis, EDS, POTS, CCSVI research, chronic fatigue and fibromyalgia. 
  • Video Blog (Youtube) - MissNikkiAnn is a mom living with a chronic illness called Dysautonomia with Postural Orthostatic Tachycardia Syndrome (POTS). Cardiogenic Syncope and Possible Autoimmune Disorder. She likes to chat about whatever is happening at the moment. She is simple, to the point, and has a wonderful vblog. 
  • Flexibility is Over-Rated - Nicole is a fellow EDSer, also suffering from Dysautonomia, who's all about being creative, stubborn, fun loving, and living the best life possible. She fully believes in nature's healing properties and has a very informative and interesting blog. 
  • But You Don't Look Sick - Christine Miserandino is a speaker, journalist, blogger, and patient advocate from NY. Her writing has been featured in numerous newspapers, magazines, medical newsletters and television media. She lives with Lupus and understands living with a chronic pain condition. Her site is very informative, motivational, and useful. 
  • Exploring Joy (Joy's Wellness Trip) - Joy has a blog detailing her life's journey with fibromyalgia and exploration of alternative medicine and treatments. 
  • Sleepless Nights - Veronica blogs from Australia about her life with EDS.

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We are looking for active Bloggers who write about living "Rare". Blogs be engaging and honest. If you are interested in having your blog listed, sign up below and you will be added to the Interesting Bloggers List.

Living Rare Bloggers